Raising a child is a joy and has its challenges. If your child has special health care needs, that job is even more complex. Navigating the system to ensure your child’s and family’s needs are met can be frustrating and overwhelming.
The Integrated Services Program and the Utah Department of Health Bureau of Children with Special Health Care Needs partners with families of children and youth with special health care needs to connect and coordinate services which may assist your child’s development.
What does the Integrated Services Program provide?
- Referral to resources and support services.
- Connecting families to Medicaid, CHIP, Supplemental Security Income and/or health insurance.
- Establishing a Care Notebook of the child’s specific needs by organizing doctor’s appointments, medications, school plans and resources; and community resources.
- Helping families to complete the Ages and Stages Questionnaires.
Reviewing results with parents and assisting with concerns as well as highlighting successes.
Making referrals to appropriate developmental resources as applicable.
- Working with families to understand the transition to adulthood process.
Providing transition-related information, resources, and referral for children with special needs ideally beginning around 12-14 years of age.
Working with youth throughout the transition period, regardless of age.
- Exploring housing and financial issues and solutions.
- Working through behavioral health issues.
- Helping families understand and work through educational needs, concerns, and plans.
- Helping families create realistic care plans that include:
– Health care goals
– Life goals
– Family self-sufficiency goals
Educational developmental goals
– Behavioral/mental health components
– Transition to adulthood activities
– Evaluating progress toward completing those goals
- Follow up and monitoring or care plans.
Your values and beliefs are important to the Integrated Services Program. You will be able to determine what, when and how they help you. Some families only need a few tips or resources. Other families need more intensive coordination for an extended period of time.